Welcome to the Intermountain PKU and Allied Disorders website!
UPDATES: BE SURE TO CHECK OUT THE FORUM!
JOIN US FOR THE
Cook for Love
Low Protein Cooking Class
This will be a great event
REGISTER HERE
Saturday October 15, 2011
9:30 AM to 4:30 PM
The class will be an amazing opportunity to learn Brenda's tips and techniques
that make all of her recipes amazing! You will learn how to make sandwich
bread, veggie nuggets, cookies and more!
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PKU HERO
Please support Brian Oliver as he rides 25 hours for PKU!
Brian Oliver will be cruising through the desert of Southern Utah on his pink one
speed bike on the first Saturday in November to raise awareness for PKU and
support research. Brian will be competing in the 25 Hour Frog Hollow mountain
bike race. Frog Hollow is the longest one day endurance mountain bike event
because it happens to coincide with the fall-back of Daylight Savings. You can
support Brian following the link and donating on the PKU Heros site. All funds
raised go directly to PKU research.
CLICK HERE TO LEARN MORE AND SUPPORT BRIAN!!
*NEW PKU BINDER FROM THE NPKUA*
The National PKU Alliance is pleased to share with you its newest
resource on
PKU management and care – My PKU Binder. This
comprehensive handbook represents
the best thinking on daily PKU
management and includes chapters based on age as
well as chapters
on dining out, traveling, emergency preparedness, insurance
coverage and more! You can also download handouts to give to
daycare providers
and teachers as well as sample letters of medical
necessity. We hope you get
new tips and resources from this new
tool to effectively manage PKU.
CLICK HERE to download the PKU Binder
Pictures from the Putt For PKU event can be found HERE
A SPECIAL THANKS TO OUR SPONSORS:
EVENT SPONSORS
BioMarin
VitaFlo
HOLE SPONSORS
Applied Nutrition
J. Philip CalabreseCambrooke Foods
Hillside Tire and Service
Image Eyes Optical
Iron Horse Racing / RichinsUofU Metabolic Clinic
Nicola Longo
Nutricia
Rex's Auto, Truck, & MarineVitaFlo
Zions Bank
Food Donations
Applied Nutrition
BioMarin
Cambrooke
PKU Perspectives
Turtle Mountain
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